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#covidisntover

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Did you guys know there is a LIFETIME cap on Medicare part A coverage for inpatient mental healthcare?? I guess this means after 190 days you get 100% of the bill.

I also learned this morning that if you’re in the hospital more than 60 says your “copay” is $419 a day, until day 61 when you pay $838 a day.

I have no idea what 60 lifetime reserve days mean, but it looks like even if you have medicare repeat covid infections will wreck your body AND your finances.

Today is international #LongCovid Awareness Day

Check this canadian interview with a Mount Sinai (NY) chronic disease specialist. Up to one in five people with COVID-19 develop LONG COVID, meaning three months after having the disease they still do not recover their full abilities.

The specialist affirms that each reinfection, even moderate, of COVID-19 subtracts between 2-6% of IQ.

LONG COVID is a disease that causes systemic damage, especially to the immune system, causing T-cell exhaustion and triggering latent diseases or exposing the body to new pathogens from which it would have been able to defend itself before. Worth a listen:

cbc.ca/player/play/audio/9.668

#CovidLong #COVID19 #CovidIsNotOver #COVIDisAirborne
#CovidIsntOver
#ImmuneSystem #ImmuneDysfunction
#autoimmune #TCell
#chronicillness
#ChronicIllnesses

Continued thread

"The act of forgetting has always been a tool of oppression. We cannot adequately resist that which has been revised, erased, or forgotten by our community members. But few will acknowledge that this is happening with COVID. Just as one may utter that “slavery was back then, get over it”, when we use verbiage like “post-pandemic” we are rendering oppression as a static past event rather than an ever-evolving present that shapes our shared future. This tactic has always been useful to those who wish to profit off of our suffering and the cycle will continue to repeat if we do not acknowledge and act on the truth of our current reality. If we do not reckon with our failures to each other around COVID and do the work to remedy it, are we better than those who try to ban our people’s histories’ from the schools? We aid in the crusade to forget every day when we do not consider the pandemic as both current and deadly."

~V. Copeland

forgeorganizing.org/article/re

The ForgeReflecting on COVID, Year 5 - The ForgeVee Copeland, a disabled organizer and former policy analyst details their experience facing the lack of care in movement strategy around surviving the current administration It has been a treacherous five years since the COVID pandemic began.  According to the World Health Organization, more than seven million people across the globe have died from COVID-19, […]
Continued thread

How to Be Disabled in a Pandemic Edited by Mara Mills, Harris Kornstein, Faye Ginsburg, and Rayna Rapp
Afterword by Judith Heumann
Foreword by Ed Yong

Open Access PDF + ePub

opensquare.nyupress.org/books/

Open Square: NYU PressHow to Be Disabled in a Pandemic[Open Access] A chronicle of ableism and disability activism in New York City during the COVID-19 pandemicHow to Be Disabled in a Pandemic documents the pivotal experiences of disabled people living in an early epicenter of COVID-19: New York City. Among those hardest hit by the pandemic, disability communities across the five boroughs have been disproportionately impacted by city and national policies, work and housing conditions, stigma, racism, and violence—as much as by the virus itself. Disabled and chronically-ill activists have protested plans for medical rationing and refuted the eugenic logic of mainstream politicians and journalists who “reassure” audiences that only older people and those with disabilities continue to die from COVID-19. At the same time, as exemplified by the viral hashtag #DisabledPeopleToldYou, disability expertise has become widely recognized in practices such as accessible remote work and education, quarantine, and distributed networks of support and mutual aid. This edited volume charts the legacies of this “mass disabling event” for uncertain viral futures, exploring the dialectic between disproportionate risk and the creativity of a disability justice response.How to Be Disabled in a Pandemic includes contributions by wide-ranging disability scholars, writers, and activists whose research and lived experiences chronicle the pandemic’s impacts in prisons, migrant detention centers, Chinatown senior centers, hospitals in Queens and the Bronx, subways, schools, housing shelters, social media, and other locations of public and private life. By focusing on New York City over the course of three years, the book reveals key themes of the pandemic, including hierarchies of disability "vulnerability," the deployment of disability as a tool of population management, and innovative crip pandemic cultural production. How to Be Disabled in a Pandemic honors those lost, as well as those who survived, by calling for just policies and caring infrastructures, not only in times of crisis but for the long haul.
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Covid-Safe Scout Mastery Badge No.7
Qualitative Fit Testing Masks/Respirators
This recipient takes time and care to put their disposable and reusable respirators through qualitative fit testing using a hood and nebulizers filled with bitter or sweet solutions to gauge fit efficacy.

Wanna earn this badge?
Use these links to learn about the fit testing process, how to use the kit, and how to DIY a fit test kit for at-home use
🔗 Allegro Industries - Bitter & Sweet Test Kits (Instructional): youtube.com/watch?v=C89eHTicEa
🔗 Still Coviding - DIY Fit Test Info: docs.google.com/document/d/1A6
🔗 Mathburritos.org - DIY Fit Testing Kit: mathburritos.org/fit-test-kit-
🔗 CDC - User Seal Check (no equipment needed): cdc.gov/niosh/docs/2018-130/pd
• Find more useful resources about fit testing respirators: covidsafescouts.com/research.h

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@ShaulaEvans @lonelinesscorps Still working: chalk art on my front walk (since March 2020 weather permitting), and writing Wikipedia articles. The first year or so, a daily morning walk in my neighborhood was crucial; but it turns out my neighborhood is kinda boring and now I'm really unmotivated to see it daily. New thing in the past year: handsewing quilts, to make gifts from a houseful of clothes I won't wear again. #covidisntover

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Covid-Safe Scout Mastery Badge No.6
Living with Long Covid
This recipient is living with physical complications resulting from a Covid infection. Long Covid is a broad umbrella term for more than 200 symptoms and conditions that can be brought about by one or more Covid infections.

Have you earned this badge?
Here are some resources to help you cope, find support and treatments, and advocate for your needs
🔗 "Take a Look Inside My Long Covid Body" - experimental body scan at UCSF: youtube.com/watch?v=QPwXRZFhGO
🔗 Long Covid The Answers - Long Covid Symptoms: longcovidtheanswers.com/catego
🔗 Long Covid Research curated by Long Covid Families: airtable.com/appoRHy3W8VNZWUhN
🔗 Long Covid Resource Guide: docs.google.com/document/d/15L
🔗 Guide to Long Covid - Documenting Your Health: guidetolongcovid.com/documenti
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Covid-Safe Scout Mastery Badge No.5
Travelling with Precautions 
This recipient carries an abundance of caution in convenient travel-size packages, using a combination of portable air purifiers and CPC mouthwash/antiviral nasal spray while wearing an N95 respirator or better at all times and self-quarantining after travel when possible. 

Wanna earn this badge?
Use these links to learn about how to travel safer—whether across town, across the country, or around the world—and protect yourself (and others) from spreading viruses
🔗 Avoid Plague - Avoiding Covid While Travelling: avoid-plague.info/goodies/covi
🔗 It’s Airborne - Reducing Covid in a Hotel: itsairborne.com/reducing-covid
🔗 Covid Prevention Resources: docs.google.com/document/d/1y7
🔗 How to Avoid Catching Covid While Flying: cntraveler.com/story/covid-pre
• Find more useful resources for assessing risks and preparing to travel: covidsafescouts.com/assessment

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