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#mecfs awareness day 

I used to blog, tweet, toot, boost etc for this, but I've done nothing this year. I think I was talking very much to the converted in our little echo chamber. It was taking energy and not achieving much. Instead, I'm trying to focus on surviving the everyday reality of it.

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this godforsaken website

godforsaken.website is a uk-based mastodon instance boasting literally thousands of posts about bumholes and UNESCO world heritage sites